May. 8th, 2008

Real Life

Life sucks, CP really sucks. I have to go to Winston Salem NC to see a specialist that gets to decide if he will or will not see me, based on my records. Pompous jack #@$#$#. I stand a better chance because I have had a rizodomi and because of my insurance. You know that second MRI that I thought would reveal nothing? No such luck. Instead it revealed FOUR things wrong with my back and the neurologist thinks its more like five. Now these would really be serious except for the slipped disk, if it wasn't for my CP, which means that because of the way that I walk the problems will keep coming back and getting worse. Plus the spasticaty is getting worse again, basically I have a lot of stuff wrong that needs a lot of stuff to fix it but in order for the stuff to fix it to work I need other stuff to happen that needs the other problem to be gone. I am caught in a snarl of tumbleweed. If we don't do something soon, it will end up with me in a wheel-chair! This is currently hard to believe when my back feels like it is on the mend, but there it is. The mend won't last. I know this, but I don't know what to do. To top that all off I am somehow suppose to lose weight, but ex cerise agrivates the problems in the back!!! Its a multiple case of catch-22!! I am going to go curl up and cry now! Suffice it to say that this is why I have not been online lately.

Possibilities of stretching castes, AF0s, nerve blocks, back surgery, therapy, canes, walkers, wheel-chairs, pain, and lord knows what else! I thought I was done with this for good!